A major national study coordinated in the North East has recommended a number of improvements which would place young people with long-term health conditions at the heart of their NHS care.
The Council for Disabled Children contributed to this research, which was led by Northumbria Healthcare NHS Foundation Trust with teams at Newcastle University and other UK institutions.
The paper finds that introducing six key factors would be likely to improve the health and experiences of young people moving from children’s to adults’ services.
The five-year programme examined the period when young people with conditions such as diabetes, cystic fibrosis, cerebral palsy, chronic mental health problems and muscular dystrophy transfer from children’s to adults’ services – known as ‘transition’. Typically this occurs between the ages of 14 and 21.